I have mixed emotions about the fact that Rowan's surgery has been canceled. I know that it happened for a reason, and that God is looking out for him. However, I also know that our last episode, is now not our last. I hate that he will have to go through another one again, but at least I know what to expect from it.
On November 5th, my daughters 1st birthday, we got a call from the PENT's office. They said that Rowan's blood work came back off, and that we would have to cancel the surgery. I had to ask her to repeat herself because I thought I heard her wrong. The blood work that they take is to show how well their blood clots. They want to make sure there will be no complication during the surgery. Both of Rowan's numbers came back slightly high. That means that, at this time, his blood doesn't clot fast enough. Of course we don't want him to bleed out or anything, so I am so very thankful that they do this test. A few things could cause the numbers to be elevated- giving him Motrin, eating food with Omega 3 or fish oil, or possibly fighting something else. I was VERY careful not to give him Motrin, or feed him anything on the list, for fear of causing a cancelation.
So, our next step is to wait 3 weeks and check his blood again. Of course, that really means we have to wait until 2 weeks after his next episode because he can't have the Motrin in his system for two weeks before the blood work.
He has his "runny nose, coughing thing" again. It happens between each episode -like clock work. I have no idea if it is related to the PFAPA, or if he is just getting sick between them. For the last 3 or 4 episodes though, it has happened. Ever since he went from every 4 to every 8 weeks.
His next one is supposed to happen early December. Our 9 year anniversary and my birthday will be during that time. We are trying to plan around it. Our sweet babies will always come first. Maybe he will skip it this time......I pray this prayer before each one.
Until then.......
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